NYAIL

Overview

Overview

The New York Association on Independent Living (NYAIL) proudly presents the 2006 Conference and Disability Caucus. More than 300 people with disabilities and other participants will be taking action for independence! The conference presents a unique opportunity for education and collaboration around the issues that must be addressed in order to change systems and change lives!

Workshop Presentations will include:

  • From Rhetoric to Results…Transforming the Independent Living Model
  • The Best in Transition Services for School Age Youth with Disabilities
  • Identifying and Overcoming Systemic Barriers to Nursing Facility Diversion
  • Empowering Young People and Increasing Youth Involvement
  • Building an Effective Grassroots Advocacy Campaign
  • Cultural Diversity in Independent Living
  • Peer Mentoring and Supports in Employment
  • Independence Care System: A Model for Nursing Home Diversion
  • Accomplishing Systems Change through Litigation
  • Medicaid Managed Care: Advocating for Access
  • New York State Plan for Independent Living 2008-2010, Public Comment
  • How to File a Voting Discrimination Complaint
  • Using the Emerging Disability Policy Framework to Support Community-Based Systems Change Initiatives
  • Systems Change in Mental Health and Long Term Care: Related Issues of Choice and Force
  • Practicing Sound Financial Risk Management: An Overview of Fraud Prevention Tips for Nonprofits

Who Should Attend

This conference will provide valuable information to people with disabilities and their families, board members and staff of Independent Living Centers and other disability rights organizations, vocational rehabilitation professionals, legislators, government agency representatives, and local business professionals.

Speakers

Keynote Speakers

Robert "Bobby" Silverstein

A behind-the-scenes architect of the landmark Americans with Disabilities Act (ADA), Robert"Bobby" Silverstein has devoted a lifetime to disability rights. Bobby served for ten years as principal advisor to Senator Tom Harkin, chief sponsor of the ADA, and today he directs the Center for the Study and Advancement of Disability Policy. Bobby will set the tone for the three-day conference by sharing strategies from his latest book: A Congressional Insider's View: How to Be an Effective Disability Policy Change Agent.

James J. Weisman

For the past 27 years, Jim Weisman has been General Counsel for the Eastern Paralyzed Veterans Association, now called United Spinal Association. He was a key negotiator with members of Congress in drafting and supporting the passage of the ADA and was integral to the development of the transportation provisions of the ADA through litigation in New York City and Philadelphia. Jim was a founding member of the Board of Directors of the American Association of People with Disabilities and in 2003 was elected Chairman of the Board. Jim is widely recognized for his many contributions to the disability rights movement.

Candidates Reception

Just one week following the conference, New Yorkers will go to the polls. NYAIL and the League of Women Voters of New York State are co-sponsoring a Candidates Reception in conjunction with the conference, on October 31 from 7:30-9:00 pm. This is your opportunity to hear from candidates for statewide office, including U.S. Senate, Governor, and Attorney General. Each candidate will be asked to provide written answers to a questionnaire regarding policy issues that impact people with disabilities in advance of the Candidates Reception. Candidates qualified to stand for the statewide offices listed above who have been selected by their parties will be invited to participate.

Disability Caucus

The statewide Disability Caucus will take place in conjunction with the NYAIL conference. The Disability Caucus, organized in collaboration with the New York State Independent Living Council, provides an opportunity for a wide variety of stakeholders to identify and prioritize issues important to people with disabilities. The caucus will include information and debate sessions facilitated by policy experts in the areas of housing, health care, employment, transportation, election reform, and inclusive education. Caucus sessions on each of these issues will meet on days one and two of the conference. On day three, all participants will meet to finalize a comprehensive, unified statewide disability action agenda for 2007. This is your opportunity to shape disability policy advocacy for the future so plan to attend!

Program

Conference Program

Monday, October 30, 2006
6:00 - 9:00am Exhibitor Setup: Fort Orange and King Street Courtyards
9:00am - 5:00pm Registration Table Open
9:00 - 10:30am Expo Grand Opening and Continental Breakfast
10:30am - 12:00pm Opening General Session and Keynote Speaker
Chairperson’s Welcome
12:00 - 1:30pm General Session and Working Lunch
1:45 - 3:00pm 5 Concurrent Workshop Sessions
3:00 - 3:30pm Exhibitor Break
3:30 - 5:30pm 5 Disability Caucus Breakout Sessions
6:15 - 7:30pm Dinner Buffet
7:30 - 10:30pm Evening Program

Tuesday, October 31, 2006

7:30am - 5:00pm Registration Table Open
7:30 - 8:30am Continental Breakfast
8:30 - 10:00am General Session and Keynote Speaker
10:00 - 10:30am Exhibitor Break
10:30 - 11:45am 5 Concurrent Workshop Sessions
12:30 - 2:00pm Luncheon and Presentation
2:00 - 3:15pm 5 Concurrent Workshop Sessions
3:15 - 3:45pm Exhibitor Break
3:45 - 5:45pm 5 Disability Caucus Breakout Sessions
5:45 - 7:30pm Dinner on your own
7:30 - 9:00pm Candidates Forum

Wednesday, November 1, 2006

7:30am - 1:00pm Registration Table Open
7:30 - 8:30am Continental Breakfast
8:30 - 10:30am General Session/ Disability Caucus
10:30 - 11:00am Exhibitor Break
11:00am -1:00pm General Session/ Disability Caucus
1:00 - 2:00pm Conference Wrap-Up
Box Lunch
2:00 - 3:30pm Post-Conference Vocational Rehabilitation State Plan Public Comment The New York State Education Department Office of Vocational and Educational Services for Individuals with Disabilities (VESID) will listen to your comments, as part of a series of public hearings across the state, on how to improve services and results for people receiving VESID services.

Workshops

Workshop Descriptions

Independence Care System: A Model for Nursing Home Diversion

Lead presenter Marilyn Saviola, Independence Care System
Co-presenters: Anna Fay, Independence Care System
Loreen Loonie, Independence Care System
Description: Independence Care System (ICS) is a Medicaid long term managed care program designed to keep people with physical disabilities and chronic illnesses in the community. The session will address key components of ICS’ model that can be replicated by other community based organizations.

Using the Emerging Disability Policy Framework to Support Community-Based Systems Change Initiatives

Lead presenter: Bobby Silverstein, Center for the Study and Advancement of Disability Policy

Description: This workshop will build on Bobby Silverstein’s keynote presentation to describe the underlying goals of disability policy and specific strategies that can be used to effect community-based system change. How can the new disability policy framework, including core principles of independent living, be used in systems change initiatives to achieve concrete results in the lives of people with disabilities?

From Rhetoric to Results…Transforming the IL Model

Lead presenter: Burt Danovitz, Resource Center for Independent Living, Inc.
Co-presenters: Joe Bravo, Westchester Independent Living Center 
Joann Marshall, Resource Center for Independent Living, Inc.

Description: The purpose of this session is to evaluate and challenge the current state of Independent Living and develop a vision and model for making centers high impact, powerful, and results oriented.

The Best in Transition Services for School Age Youth with Disabilities

Lead presenter: Robert Gumson, Vocational and Educational Services for Individuals with Disabilities, New York State Education Department
Co-presenters: Ramon Santos, Center for the Independence of the Disabled in New York 
Jill Dirkin, AIM Independent Living Center

Description: The best in transition services workshop offers an overview of three models funded by the Office of Vocational and Educational Services for Individuals with Disabilities using Individuals with Disabilities Education Act discretionary resources aimed at enhancing transition outcomes for youth with disabilities across New York State.

Cultural Diversity in Independent Living

Lead presenter: TBD

Description: This workshop will discuss how independent living centers and other disability organizations can ensure they are meeting the needs of people from a variety of backgrounds and are fully welcoming to all.  How can centers fully engage people from a variety of cultural and ethnic groups in center activities and improve their capacity to offer services that are consistent with and supportive of all cultures?

Building an Effective Grassroots Advocacy Campaign

Lead presenter: Enzo Pastore, Center for Independence of the Disabled in New York
Description: This hands-on interactive workshop will take participants through the continuum of building and maintaining a grassroots advocacy campaign, including ideas for building coalitions, crafting the right message and building legislative relationships.

Identifying and Overcoming Systemic Barriers to Nursing Facility Diversion

Lead presenter: Chris Hilderbrant, Center for Disability Rights

Description: This session will discuss the results of coordinated nursing facility diversion projects around the state.  We will concentrate on the consistently identified barriers to community living and successful methods staff and consumers used to overcome the barriers.

Practicing Sound Financial Risk Management: An Overview of Fraud Prevention Tips for Nonprofits

Lead presenter: Kelly Mathews, Council of Community Services of New York State

Description: Nonprofits are increasingly scrutinized by auditors as well as our constituencies regarding financial management and any appearance of wrongdoing. In this session, participants will learn some practical tips and tools for implementing financial risk management strategies to mitigate fraud risk and strengthen internal controls.

Peer Mentoring & Supports In Employment

Lead presenter: Nicholas Rose, New York State Developmental Disabilities Planning Council
Co-presenters: Robert Gumson, Vocational and Educational Services for Individuals with Disabilities, New York State Education Department (VESID)
Andrew Pulrang, North Country Center for Independence 
Joe Bravo, Westchester Independent Living Center 
Bill Cooperman, Rockland Independent Living Center

Description: This panel will focus on the New York State Developmental Disabilities Planning Council cooperative initiative with VESID and Independent Living Centers to demonstrate methods of providing peer based assistance in preparing for, identifying, obtaining and maintaining employment.

How to File a Voting Discrimination Complaint

Lead presenter: Brad Williams, New York State Independent Living Council
Co-presenter: Christine Zachmeyer, Catskill Center for Independence

Description: Participants will learn how to access an online site to record voting discrimination complaints for Election Day 2006. This process will be crucial given that NYS will not fully comply with the Help America Vote Act (HAVA) in 2006.

Accomplishing Systems Change through Litigation

Lead presenter: Melvyn R. Tanzman, Westchester Disabled On the Move, Inc.
Co-presenter: William Frumkin, Esq.,  Sapir And Frumkin

Description: Organizations representing people with disabilities often find individuals can only be assisted by changing the systems that impact their lives. This is a case study of how a community-based agency can accomplish systems change outcomes by collaborating with legal professionals.

Empowering Young People and Increasing Youth Involvement

Lead presenter: Stephanie Orlando, Families Together in New York State
Co-presenters: Eva Dech, Westchester Independent Living Center 
Dally M. Sanchez, Westchester Independent Living Center 
Lauren J. Tenney, Graduate Center, CUNY Psychology Department

Description: This session provides a basic overview of ways to empower young people with disabilities to take the lead in their life and become active participants in the design and implementation of services.

Medicaid Managed Care: Advocating for Access

Lead presenter: Margi Trapani, Center for Independence of the Disabled in New York
Co-presenter: Don Rickenbaugh, Center for Independence of the Disabled in New York

Description: This workshop examines the ins and outs of Medicaid Managed Care and resources for navigating the plans. Segments include: choosing a plan, monitoring benefits and care, and the appeals process.

New York State Plan for Independent Living 2008-2010, Public Comment

Lead presenter: Brad Williams, New York State Independent Living Council

Description: The New York State Independent Living Council will facilitate public input on the formulation of the Statewide Plan for Independent Living for 2008-2010.

Systems Change in Mental Health and Long Term Care: Related Issues of Choice and Force

Lead presenter: TBD

Description: Advocates have long focused on ending forced psychiatric treatment and supporting the right to choose services in the mental health system.  The long term care system presents similar challenges to an individual’s right to choose services and supports, and to receive them in the community, not institutions.  This workshop will address the shared dilemmas and strategies available to advocates and individuals struggling to get the services they need and want, rather than those the mental health and long term care systems think they should have.